MS Australia - Contributing Author
MS Australia is the national voice for people with Multiple Sclerosis in Australia. They work primarily in research, advocacy and awareness raising and are a great resource for people with MS, and anyone interested in knowing more about MS.
They cover a whole lot of info and have a strong focus on information related to Health and Wellness.
My contributions to their series 'Wellbeing Wednesday' are listed below with links to the full articles.
Forget New Year's Day Resolutions - examine the 5 'Stages of Change' to help you succeed.
Stop blaming yourself for a lack of will power and build a 'Fortress of Habit' instead.
The MSIF are onto something with their 'refreshed' Quality of Life principles for people with MS.
Coping with Christmas Stress.
Effective Communication (don't aim for 'comfortable').
Multiple Sclerosis and Depression - it is seriously complicated.
Control Freak?! It's not all that bad!
Five Years Post Diagnosis. Some things to consider.
Managing the Emotional Rollercoaster.
Feeling Empowered. Key questions to ask at diagnosis.
A Different Perspective. 5 ways a psychologist can help.
They cover a whole lot of info and have a strong focus on information related to Health and Wellness.
My contributions to their series 'Wellbeing Wednesday' are listed below with links to the full articles.
Forget New Year's Day Resolutions - examine the 5 'Stages of Change' to help you succeed.
Stop blaming yourself for a lack of will power and build a 'Fortress of Habit' instead.
The MSIF are onto something with their 'refreshed' Quality of Life principles for people with MS.
Coping with Christmas Stress.
Effective Communication (don't aim for 'comfortable').
Multiple Sclerosis and Depression - it is seriously complicated.
Control Freak?! It's not all that bad!
Five Years Post Diagnosis. Some things to consider.
Managing the Emotional Rollercoaster.
Feeling Empowered. Key questions to ask at diagnosis.
A Different Perspective. 5 ways a psychologist can help.
Multiple Sclerosis International Federation (MSIF)
The MS International Federation is a unique global network of MS organisations, people affected by MS, volunteers and staff from around the world. They are made up of 49 MS organisations with links to many others. There vision is a world without MS. It's a good vision!
The MSIF produce a journal called MS In Focus. I was asked to write an article on accessing information online:
Evaluating Information: Knowing which information to trust.
In 2016, contributors from over 30 countries came together to review the MSIF's 'Quality of Life Principles for PwMS'. The question 'What influences quality of life with MS and how can we improve it?' was asked of all contributors, and the new 'refreshed' version of the original 2005 set of principles was published in 2017. I was thrilled to be part of the conversation that resulted in a great document worthy of having a look at. Quality of life is highly personal and changeable, and it is for individuals with MS themselves to determine what matters to them. Yes, it does seem obvious, but kind of a new way of thinking considering so much within the medical model is still lumped on the mobility of a PwMS, and so little tied to mental health for example.
What influences Quality of Life with MS and how can we improve it?
The MSIF produce a journal called MS In Focus. I was asked to write an article on accessing information online:
Evaluating Information: Knowing which information to trust.
In 2016, contributors from over 30 countries came together to review the MSIF's 'Quality of Life Principles for PwMS'. The question 'What influences quality of life with MS and how can we improve it?' was asked of all contributors, and the new 'refreshed' version of the original 2005 set of principles was published in 2017. I was thrilled to be part of the conversation that resulted in a great document worthy of having a look at. Quality of life is highly personal and changeable, and it is for individuals with MS themselves to determine what matters to them. Yes, it does seem obvious, but kind of a new way of thinking considering so much within the medical model is still lumped on the mobility of a PwMS, and so little tied to mental health for example.
What influences Quality of Life with MS and how can we improve it?
MS
MS provides information, advice and services for people living with Multiple Sclerosis in Victoria, NSW, ACT and Tasmania. They publish a quarterly magazine for people with MS called In Touch. I was interviewed for this article on parenting and MS, and how to talk to children about a parent who has MS.
Parenting and MS: Communication is key.
Parenting and MS: Communication is key.
Multiple Sclerosis Journal - Experimental, Translational and Clinical
Multiple Sclerosis Journal – Experimental, Translational and Clinical is an international, peer-reviewed, open access publication that augments the potential to publish across the broad spectrum of experimental, translational and clinical topics in Multiple Sclerosis. It is an open access publication; all articles are rigorously peer-reviewed, and brought to online publication as quickly as possible. It facilitates the rapid publication of high quality papers in:
• Emerging observations with translational potential not yet realised
• Early validation of clinical outcome metrics
• Pilot trials which may stimulate therapeutic innovation
• Geographic focus which validate and add to existing studies
• Highly specialised areas of experimental, translational and clinical research.
I was one of the contributing authors of an article published in November 2018:
Can a stress management programme reduce stress and improve quality of life in people diagnosed with multiple sclerosis?
• Emerging observations with translational potential not yet realised
• Early validation of clinical outcome metrics
• Pilot trials which may stimulate therapeutic innovation
• Geographic focus which validate and add to existing studies
• Highly specialised areas of experimental, translational and clinical research.
I was one of the contributing authors of an article published in November 2018:
Can a stress management programme reduce stress and improve quality of life in people diagnosed with multiple sclerosis?
Doctoral Thesis
Well, this was the big one. Completed in 2007, so while a lot of it is still really relevant, the medications have come a long way since then. Feel free to read it (or maybe just skim the contents pages)!
"Trying to take control while attempting to adapt: perspectives of people with multiple sclerosis on the twelve months following diagnosis"
"Trying to take control while attempting to adapt: perspectives of people with multiple sclerosis on the twelve months following diagnosis"