Resources

MS Australia - Contributing Author

MS Australia is the national voice for people with Multiple Sclerosis in Australia. They work primarily in research, advocacy and awareness raising and are a great resource for people with MS, and anyone interested in knowing more about MS. MS Plus raises public awareness about MS. They cover a whole lot of info and have a strong focus on information related to Health and Wellness.

You can find some of our contributions here:

Multiple Sclerosis International Federation (MSIF)

The MS International Federation is a unique global network of MS organisations, people affected by MS, volunteers and staff from around the world. They are made up of 49 MS organisations with links to many others. There vision is a world without MS. It’s a good vision! The MSIF produce a journal called MS In Focus.

I was asked to write an article on accessing information online: ​

Evaluating Information:  Knowing which information to trust.

In 2016, contributors from over 30 countries came together to review the MSIF’s ‘Quality of Life Principles for PwMS’.  The question ‘What influences quality of life with MS and how can we improve it?’ was asked of all contributors, and the new ‘refreshed’ version of the original 2005 set of principles was published in 2017. 

I was thrilled to be part of the conversation that resulted in a great document worthy of having a look at.  Quality of life is highly personal and changeable, and it is for individuals with MS themselves to determine what matters to them.  Yes, it does seem obvious, but kind of a new way of thinking considering so much within the medical model is still lumped on the mobility of a PwMS, and so little tied to mental health for example.

What influences Quality of Life with MS and how can we improve it?

Doctoral Thesis

Well, this was the big one.  Completed in 2007, so while a lot of it is still really relevant, the medications have come a long way since then.

Feel free to read it (or maybe just skim the contents pages)! ​

“Trying to take control while attempting to adapt: perspectives of people with multiple sclerosis on the twelve months following diagnosis”

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